Evaluation of the quality of life in dementia with a generic quality of life questionnaire: the Duke Health Profile.
Identifieur interne : 001E35 ( Main/Exploration ); précédent : 001E34; suivant : 001E36Evaluation of the quality of life in dementia with a generic quality of life questionnaire: the Duke Health Profile.
Auteurs : J. Novella [France] ; J. Ankri ; I. Morrone ; F. Guillemin ; D. Jolly ; C. Jochum ; L. Ploton ; F. BlanchardSource :
- Dementia and geriatric cognitive disorders [ 1420-8008 ]
Descripteurs français
- KwdFr :
- Adulte d'âge moyen (MeSH), Démence (psychologie), Enquêtes et questionnaires (MeSH), Femelle (MeSH), Humains (MeSH), Mâle (MeSH), Qualité de vie (MeSH), Reproductibilité des résultats (MeSH), Sujet âgé (MeSH), Tests neuropsychologiques (MeSH), Troubles de la cognition (diagnostic), Études de faisabilité (MeSH).
- MESH :
- diagnostic : Troubles de la cognition.
- psychologie : Démence.
- Adulte d'âge moyen, Enquêtes et questionnaires, Femelle, Humains, Mâle, Qualité de vie, Reproductibilité des résultats, Sujet âgé, Tests neuropsychologiques, Études de faisabilité.
English descriptors
- KwdEn :
- MESH :
- diagnosis : Cognition Disorders.
- psychology : Dementia.
- Aged, Feasibility Studies, Female, Humans, Male, Middle Aged, Neuropsychological Tests, Quality of Life, Reproducibility of Results, Surveys and Questionnaires.
Abstract
OBJECTIVE
The study was designed to determine the acceptability, feasibility and validity of measuring quality of life in a representative sample of dementia patients with a generic instrument, the Duke Health Profile.
METHOD
The French version of the Duke Health Profile was administered to 148 subjects with a mental disorder according to the DSM-III-R diagnostic criteria. The feasibility and acceptability of employing the instrument were determined by the refusal rate, the type of administration, and the percentage and distribution of missing data. Reliability was determined with Cronbach's alpha coefficient. Instrument reproducibility was assessed with the intraclass correlation coefficient for test-retest values. Internal construct validity was determined by factor analysis. Discriminant capacity was determined by comparing the average scores on each measure among patients with and without an additional chronic pathology. The measurements obtained were compared by source of information (patient, family proxy and care provider proxy).
RESULTS
The feasibility and acceptability of the instrument was good. Only 2% of the patients refused to complete the questionnaire. Help from the interviewer was necessary in 79% of the cases. The average completion time was 10.6 min. Missing data exist in only 3.5% of the cases on average, except among patients with severe dementia (Mini Mental State Examination <10). For reliability, internal consistency was acceptable (Cronbach's coefficient alpha = 0.5--0.7) when the self-esteem (0.23) and social health (0.26) concepts were eliminated. Reproducibility as measured by test-retest scores was moderate to good (intraclass correlation coefficient r = 0.53--0.80), except for anxiety (0.48) and perceived health (0.45). Severity of dementia mainly affected the feasibility, acceptability and reproducibility of the instrument. The family proxy seemed to agree more with the patient than did the care provider proxy.
CONCLUSION
Quality of life can be measured in patients with dementia, but special tools need to be developed for severe dementia.
DOI: 10.1159/000051251
PubMed: 11173890
Affiliations:
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Ankri</name></author><author><name sortKey="Morrone, I" sort="Morrone, I" uniqKey="Morrone I" first="I" last="Morrone">I. Morrone</name></author><author><name sortKey="Guillemin, F" sort="Guillemin, F" uniqKey="Guillemin F" first="F" last="Guillemin">F. Guillemin</name></author><author><name sortKey="Jolly, D" sort="Jolly, D" uniqKey="Jolly D" first="D" last="Jolly">D. Jolly</name></author><author><name sortKey="Jochum, C" sort="Jochum, C" uniqKey="Jochum C" first="C" last="Jochum">C. Jochum</name></author><author><name sortKey="Ploton, L" sort="Ploton, L" uniqKey="Ploton L" first="L" last="Ploton">L. Ploton</name></author><author><name sortKey="Blanchard, F" sort="Blanchard, F" uniqKey="Blanchard F" first="F" last="Blanchard">F. 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Novella</name><affiliation wicri:level="3"><nlm:affiliation>Department of Internal Medicine and Gerontology, Hôpital Sébastopol, Reims, France. jlnovella@aol.com</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Internal Medicine and Gerontology, Hôpital Sébastopol, Reims</wicri:regionArea><placeName><region type="region">Grand Est</region><region type="old region">Champagne-Ardenne</region><settlement type="city">Reims</settlement></placeName></affiliation></author><author><name sortKey="Ankri, J" sort="Ankri, J" uniqKey="Ankri J" first="J" last="Ankri">J. Ankri</name></author><author><name sortKey="Morrone, I" sort="Morrone, I" uniqKey="Morrone I" first="I" last="Morrone">I. Morrone</name></author><author><name sortKey="Guillemin, F" sort="Guillemin, F" uniqKey="Guillemin F" first="F" last="Guillemin">F. Guillemin</name></author><author><name sortKey="Jolly, D" sort="Jolly, D" uniqKey="Jolly D" first="D" last="Jolly">D. Jolly</name></author><author><name sortKey="Jochum, C" sort="Jochum, C" uniqKey="Jochum C" first="C" last="Jochum">C. Jochum</name></author><author><name sortKey="Ploton, L" sort="Ploton, L" uniqKey="Ploton L" first="L" last="Ploton">L. Ploton</name></author><author><name sortKey="Blanchard, F" sort="Blanchard, F" uniqKey="Blanchard F" first="F" last="Blanchard">F. Blanchard</name></author></analytic><series><title level="j">Dementia and geriatric cognitive disorders</title><idno type="ISSN">1420-8008</idno></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Aged (MeSH)</term><term>Cognition Disorders (diagnosis)</term><term>Dementia (psychology)</term><term>Feasibility Studies (MeSH)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Male (MeSH)</term><term>Middle Aged (MeSH)</term><term>Neuropsychological Tests (MeSH)</term><term>Quality of Life (MeSH)</term><term>Reproducibility of Results (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte d'âge moyen (MeSH)</term><term>Démence (psychologie)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Mâle (MeSH)</term><term>Qualité de vie (MeSH)</term><term>Reproductibilité des résultats (MeSH)</term><term>Sujet âgé (MeSH)</term><term>Tests neuropsychologiques (MeSH)</term><term>Troubles de la cognition (diagnostic)</term><term>Études de faisabilité (MeSH)</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Cognition Disorders</term></keywords><keywords scheme="MESH" qualifier="diagnostic" xml:lang="fr"><term>Troubles de la cognition</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Démence</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Dementia</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Aged</term><term>Feasibility Studies</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Neuropsychological Tests</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte d'âge moyen</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Humains</term><term>Mâle</term><term>Qualité de vie</term><term>Reproductibilité des résultats</term><term>Sujet âgé</term><term>Tests neuropsychologiques</term><term>Études de faisabilité</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>OBJECTIVE</b></p><p>The study was designed to determine the acceptability, feasibility and validity of measuring quality of life in a representative sample of dementia patients with a generic instrument, the Duke Health Profile.</p></div><div type="abstract" xml:lang="en"><p><b>METHOD</b></p><p>The French version of the Duke Health Profile was administered to 148 subjects with a mental disorder according to the DSM-III-R diagnostic criteria. The feasibility and acceptability of employing the instrument were determined by the refusal rate, the type of administration, and the percentage and distribution of missing data. Reliability was determined with Cronbach's alpha coefficient. Instrument reproducibility was assessed with the intraclass correlation coefficient for test-retest values. Internal construct validity was determined by factor analysis. Discriminant capacity was determined by comparing the average scores on each measure among patients with and without an additional chronic pathology. The measurements obtained were compared by source of information (patient, family proxy and care provider proxy).</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>The feasibility and acceptability of the instrument was good. Only 2% of the patients refused to complete the questionnaire. Help from the interviewer was necessary in 79% of the cases. The average completion time was 10.6 min. Missing data exist in only 3.5% of the cases on average, except among patients with severe dementia (Mini Mental State Examination <10). For reliability, internal consistency was acceptable (Cronbach's coefficient alpha = 0.5--0.7) when the self-esteem (0.23) and social health (0.26) concepts were eliminated. Reproducibility as measured by test-retest scores was moderate to good (intraclass correlation coefficient r = 0.53--0.80), except for anxiety (0.48) and perceived health (0.45). Severity of dementia mainly affected the feasibility, acceptability and reproducibility of the instrument. The family proxy seemed to agree more with the patient than did the care provider proxy.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSION</b></p><p>Quality of life can be measured in patients with dementia, but special tools need to be developed for severe dementia.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">11173890</PMID><DateCompleted><Year>2001</Year><Month>07</Month><Day>12</Day></DateCompleted><DateRevised><Year>2019</Year><Month>12</Month><Day>10</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">1420-8008</ISSN><JournalIssue CitedMedium="Print"><Volume>12</Volume><Issue>2</Issue><PubDate><MedlineDate>2001 Mar-Apr</MedlineDate></PubDate></JournalIssue><Title>Dementia and geriatric cognitive disorders</Title><ISOAbbreviation>Dement Geriatr Cogn Disord</ISOAbbreviation></Journal><ArticleTitle>Evaluation of the quality of life in dementia with a generic quality of life questionnaire: the Duke Health Profile.</ArticleTitle><Pagination><MedlinePgn>158-66</MedlinePgn></Pagination><Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">The study was designed to determine the acceptability, feasibility and validity of measuring quality of life in a representative sample of dementia patients with a generic instrument, the Duke Health Profile.</AbstractText><AbstractText Label="METHOD" NlmCategory="METHODS">The French version of the Duke Health Profile was administered to 148 subjects with a mental disorder according to the DSM-III-R diagnostic criteria. The feasibility and acceptability of employing the instrument were determined by the refusal rate, the type of administration, and the percentage and distribution of missing data. Reliability was determined with Cronbach's alpha coefficient. Instrument reproducibility was assessed with the intraclass correlation coefficient for test-retest values. Internal construct validity was determined by factor analysis. Discriminant capacity was determined by comparing the average scores on each measure among patients with and without an additional chronic pathology. The measurements obtained were compared by source of information (patient, family proxy and care provider proxy).</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The feasibility and acceptability of the instrument was good. Only 2% of the patients refused to complete the questionnaire. Help from the interviewer was necessary in 79% of the cases. The average completion time was 10.6 min. Missing data exist in only 3.5% of the cases on average, except among patients with severe dementia (Mini Mental State Examination <10). For reliability, internal consistency was acceptable (Cronbach's coefficient alpha = 0.5--0.7) when the self-esteem (0.23) and social health (0.26) concepts were eliminated. Reproducibility as measured by test-retest scores was moderate to good (intraclass correlation coefficient r = 0.53--0.80), except for anxiety (0.48) and perceived health (0.45). Severity of dementia mainly affected the feasibility, acceptability and reproducibility of the instrument. The family proxy seemed to agree more with the patient than did the care provider proxy.</AbstractText><AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">Quality of life can be measured in patients with dementia, but special tools need to be developed for severe dementia.</AbstractText><CopyrightInformation>Copyright 2001 S. Karger AG, Basel</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Novella</LastName><ForeName>J</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine and Gerontology, Hôpital Sébastopol, Reims, France. jlnovella@aol.com</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ankri</LastName><ForeName>J</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Morrone</LastName><ForeName>I</ForeName><Initials>I</Initials></Author><Author ValidYN="Y"><LastName>Guillemin</LastName><ForeName>F</ForeName><Initials>F</Initials></Author><Author ValidYN="Y"><LastName>Jolly</LastName><ForeName>D</ForeName><Initials>D</Initials></Author><Author ValidYN="Y"><LastName>Jochum</LastName><ForeName>C</ForeName><Initials>C</Initials></Author><Author ValidYN="Y"><LastName>Ploton</LastName><ForeName>L</ForeName><Initials>L</Initials></Author><Author ValidYN="Y"><LastName>Blanchard</LastName><ForeName>F</ForeName><Initials>F</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D023362">Evaluation Study</PublicationType><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>Switzerland</Country><MedlineTA>Dement Geriatr Cogn Disord</MedlineTA><NlmUniqueID>9705200</NlmUniqueID><ISSNLinking>1420-8008</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000368" MajorTopicYN="N">Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003072" MajorTopicYN="N">Cognition Disorders</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="N">diagnosis</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D003704" MajorTopicYN="N">Dementia</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005240" MajorTopicYN="N">Feasibility Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D009483" MajorTopicYN="N">Neuropsychological Tests</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D015203" MajorTopicYN="N">Reproducibility of Results</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="Y">Surveys and Questionnaires</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2001</Year><Month>2</Month><Day>15</Day><Hour>11</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2001</Year><Month>7</Month><Day>19</Day><Hour>10</Hour><Minute>1</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2001</Year><Month>2</Month><Day>15</Day><Hour>11</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">11173890</ArticleId><ArticleId IdType="pii">51251</ArticleId><ArticleId IdType="doi">10.1159/000051251</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li></country><region><li>Champagne-Ardenne</li><li>Grand Est</li></region><settlement><li>Reims</li></settlement></list><tree><noCountry><name sortKey="Ankri, J" sort="Ankri, J" uniqKey="Ankri J" first="J" last="Ankri">J. Ankri</name><name sortKey="Blanchard, F" sort="Blanchard, F" uniqKey="Blanchard F" first="F" last="Blanchard">F. Blanchard</name><name sortKey="Guillemin, F" sort="Guillemin, F" uniqKey="Guillemin F" first="F" last="Guillemin">F. Guillemin</name><name sortKey="Jochum, C" sort="Jochum, C" uniqKey="Jochum C" first="C" last="Jochum">C. Jochum</name><name sortKey="Jolly, D" sort="Jolly, D" uniqKey="Jolly D" first="D" last="Jolly">D. Jolly</name><name sortKey="Morrone, I" sort="Morrone, I" uniqKey="Morrone I" first="I" last="Morrone">I. Morrone</name><name sortKey="Ploton, L" sort="Ploton, L" uniqKey="Ploton L" first="L" last="Ploton">L. Ploton</name></noCountry><country name="France"><region name="Grand Est"><name sortKey="Novella, J" sort="Novella, J" uniqKey="Novella J" first="J" last="Novella">J. Novella</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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